Kahramanmaras Sutcu Imam University — Biomedical Watch V2

Traitements4programmes

Essais2liés

Publications4liées

SourceDBlocale

Traitements

4

Molécule	Indication / population	Phase	Objectif	Pays	Résultat
Awareness Levels of Caregivers of Disabled ChildrenDisability-or apology; It is the inability or incompleteness of individuals to fulfill their roles in life, such as age, gender, culture, social and psychological factors, due to their inadequacies. Disability is not only a mental or physical health problem, but also a social problem. Having a disabled child and the type of disability present various difficulties to parents in the course of life. The difficulties in the care and education of these children are based on psychological, physical, social, economic and cultural realities.Families with diseases such as Cerebral Palsy (SP), Spina Bifida (SB), Muscular Dystrophy (MD), Down Syndrome (DS) are among them. Having a disabled child in the community can affect families in different ways. Every step of the education of disabled children (purpose, principle, education plan, game, school and family duties, etc.) is important for the disabled individual, family, teacher and society.	Myopathies	À vérifier	À vérifier	Turkey (Türkiye)	À vérifier
MotorImagery — Upper Extremity Motor Imagery Functional Skills and Quality of Life in Patients With Multiple SclerosisMultiple sclerosis (MS) is a chronic inflammatory and autoimmune disease of the central nervous system (CNS) characterised by axonal loss and demyelination. MS is characterized by myelin, oligodendrocyte and axon damage. MS progresses in a wide spectrum, with motor, sensory, autonomic and cognitive disorders depending on the area affected. Upper extremity dysfunction is common in patients with MS (pwMS), too. 75% of pwMS have impaired ability to perform activities of daily living (ADL) and quality of life (QoL). Motor imagery (MI) refers to the mental simulation of an action without physical intervention. MS is also characterised by motor and cognitive symptoms. Cognitive impairment, seen in approximately 40-70% of patients, is mainly related to problems in attention, information processing speed, memory, cognitive and visual structure. MI refers to the mental simulation of an action without physical intervention, which can be classified as explicit or implicit. MI skill is linked to motor planning and execution skills. MI is related to the subconscious activation of motor systems that play a role not only in producing movement, but also in imagining actions, learning through observation, recognising tools, and also understanding other people's behaviour.The speed and quality of upper extremity functional skills in pwMS may be related to MI ability. Health-related quality of life (HRQoL) is an individual's assessment of how a health problem and its treatment affect their ability to perform daily activities and roles. Research studies have shown that pwMS report lower QoL scores than healthy controls. Losses in upper extremity functional skills may affect the activities of daily living and work life in pwMS, leading to a decrease in their QoL. When evaluating MI ability in these patients, the patient's functional skills and cognitive status should also be taken into consideration. It is thought that upper extremity MI skills may be negatively affected by impairments with the cognitive syptoms in pwMS. The aim of this study is to investigate the relationship between upper extremity MI ability, upper extremity functional skills and QoL in pwMS.	SEP	À vérifier	Remyélinisation	Turkey (Türkiye)	À vérifier
Awareness Levels of Caregivers of Disabled ChildrenDisability-or apology; It is the inability or incompleteness of individuals to fulfill their roles in life, such as age, gender, culture, social and psychological factors, due to their inadequacies. Disability is not only a mental or physical health problem, but also a social problem. Having a disabled child and the type of disability present various difficulties to parents in the course of life. The difficulties in the care and education of these children are based on psychological, physical, social, economic and cultural realities.Families with diseases such as Cerebral Palsy (SP), Spina Bifida (SB), Muscular Dystrophy (MD), Down Syndrome (DS) are among them. Having a disabled child in the community can affect families in different ways. Every step of the education of disabled children (purpose, principle, education plan, game, school and family duties, etc.) is important for the disabled individual, family, teacher and society.	Myopathies	À vérifier	À vérifier	Turkey (Türkiye)	À vérifier
MotorImagery — Upper Extremity Motor Imagery Functional Skills and Quality of Life in Patients With Multiple SclerosisMultiple sclerosis (MS) is a chronic inflammatory and autoimmune disease of the central nervous system (CNS) characterised by axonal loss and demyelination. MS is characterized by myelin, oligodendrocyte and axon damage. MS progresses in a wide spectrum, with motor, sensory, autonomic and cognitive disorders depending on the area affected. Upper extremity dysfunction is common in patients with MS (pwMS), too. 75% of pwMS have impaired ability to perform activities of daily living (ADL) and quality of life (QoL). Motor imagery (MI) refers to the mental simulation of an action without physical intervention. MS is also characterised by motor and cognitive symptoms. Cognitive impairment, seen in approximately 40-70% of patients, is mainly related to problems in attention, information processing speed, memory, cognitive and visual structure. MI refers to the mental simulation of an action without physical intervention, which can be classified as explicit or implicit. MI skill is linked to motor planning and execution skills. MI is related to the subconscious activation of motor systems that play a role not only in producing movement, but also in imagining actions, learning through observation, recognising tools, and also understanding other people's behaviour.The speed and quality of upper extremity functional skills in pwMS may be related to MI ability. Health-related quality of life (HRQoL) is an individual's assessment of how a health problem and its treatment affect their ability to perform daily activities and roles. Research studies have shown that pwMS report lower QoL scores than healthy controls. Losses in upper extremity functional skills may affect the activities of daily living and work life in pwMS, leading to a decrease in their QoL. When evaluating MI ability in these patients, the patient's functional skills and cognitive status should also be taken into consideration. It is thought that upper extremity MI skills may be negatively affected by impairments with the cognitive syptoms in pwMS. The aim of this study is to investigate the relationship between upper extremity MI ability, upper extremity functional skills and QoL in pwMS.	SEP	À vérifier	Remyélinisation	Turkey (Türkiye)	À vérifier

Essais cliniques

2

Molécule	Indication / population	Phase	NCT	Titre	Statut
MotorImagery — Upper Extremity Motor Imagery Functional Skills and Quality of Life in Patients With Multiple Sclerosis	SEP	À vérifier	NCT06572059	MotorImagery — Upper Extremity Motor Imagery Functional Skills and Quality of Life in Patients With Multiple Sclerosis	COMPLETED
Awareness Levels of Caregivers of Disabled Children	Myopathies	À vérifier	NCT05228405	Awareness Levels of Caregivers of Disabled Children	COMPLETED

Publications

4

Molécule	Indication / population	Titre	Journal	Date
Awareness Levels of Caregivers of Disabled Children		A qualitative exploration of self-compassion for caregivers of children with physical disabilities.	Rehabilitation psychology
Awareness Levels of Caregivers of Disabled Children		A qualitative study on the vulnerability factors of unintentional injuries among children aged 3-12 in Guizhou Province, China, based on the social-ecological model.	Frontiers in public health
Awareness Levels of Caregivers of Disabled Children		Experiences of women with disabilities accessing maternal and newborn health services in Mogadishu, Somalia.	Reproductive health
Awareness Levels of Caregivers of Disabled Children		The effect of a mindfulness-based stress reduction program on stress and quality of life in mothers of children with physical disabilities: A single-blind randomized controlled trial.	Journal of affective disorders